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My MacTel Journey
In the beginning In 2022, I went in for what I thought was just a normal eye appointment — a quick checkup and new glasses, nothing more. But that day changed everything. During my exam, my optometrist noticed something unusual on my eye scan. He didn’t say much, just that I needed to see a retinal specialist. I remember feeling uneasy but hopeful it was nothing serious. At my first visit with the retinal specialist, I went through a series of tests. I had already done some
Lisa Hollander
Oct 232 min read
Living with MacTel: Personal Stories and Resources
Macular Telangiectasia (MacTel) is a rare eye condition that affects the central part of the retina, called the macula. This area is crucial for sharp, detailed vision. Living with MacTel can be challenging, as it gradually impacts the ability to see fine details, read, recognize faces, and perform everyday tasks. This blog post shares personal stories from people living with MacTel and offers practical resources to help manage the condition. MacTel is not widely known, and
Lisa Hollander
Oct 304 min read
Connecting MacTel Patients: Support and Awareness Initiatives
Macular Telangiectasia (MacTel) is a rare eye condition that affects the central part of the retina, leading to vision loss over time. For those diagnosed with MacTel, the journey can feel isolating and uncertain. Connecting patients through support networks and raising awareness about the condition are essential steps to improve quality of life and foster hope. This post explores how MacTel patients can find support, the role of awareness initiatives, and practical ways comm
Lisa Hollander
Oct 303 min read
Understanding MacTel: A Guide to Central Vision Loss
Central vision loss can dramatically affect daily life, making simple tasks like reading, recognizing faces, or driving difficult. One lesser-known cause of this problem is Macular Telangiectasia, often called MacTel. This condition affects the macula, the part of the eye responsible for sharp, central vision. Understanding MacTel helps those affected and their loved ones manage the condition better and seek appropriate care. MacTel is a rare eye disease that causes changes
Lisa Hollander
Oct 304 min read
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